14 6 / 2013
Chewing on some apple. It’s still a guessing game to see what she will take interest in. This is maybe the fourth solid food she has ever wanted to eat. She also drank by mouth 2 oz of milk, in 4 separate feedings today! It was a good day :). The next major milestone is to drink by mouth half of each feeding, which is 3-4 ounces. We’re getting there :)
13 6 / 2013
Drowning Doesn’t Look Like Drowning
The new captain jumped from the deck, fully dressed, and sprinted through the water. A former lifeguard, he kept his eyes on his victim as he headed straight for the couple swimming between their anchored sportfisher and the beach. I think he thinks youre drowning, the husband said to his wife. They had been splashing each other and she had screamed but now they were just standing, neck-deep on the sand bar. “We’re fine; what is he doing?” she asked, a little annoyed. “We’re fine!” the husband yelled, waving him off, but his captain kept swimming hard. ”Move!” he barked as he sprinted between the stunned owners. Directly behind them, not 10 feet away, their 9-year-old daughter was drowning. Safely above the surface in the arms of the captain, she burst into tears, “Daddy!”How did this captain know—from 50 feet away—what the father couldn’t recognize from just 10? Drowning is not the violent, splashing call for help that most people expect. The captain was trained to recognize drowning by experts and years of experience. The father, on the other hand, had learned what drowning looks like by watching television. If you spend time on or near the water (hint: that’s all of us) then you should make sure that you and your crew know what to look for whenever people enter the water. Until she cried a tearful, “Daddy,” she hadn’t made a sound. As a former Coast Guard rescue swimmer, I wasn’t surprised at all by this story. Drowning is almost always a deceptively quiet event. The waving, splashing, and yelling that dramatic conditioning (television) prepares us to look for is rarely seen in real life.The Instinctive Drowning Response—so named by Francesco A. Pia, Ph.D., is what people do to avoid actual or perceived suffocation in the water. And it does not look like most people expect. There is very little splashing, no waving, and no yelling or calls for help of any kind. To get an idea of just how quiet and undramatic from the surface drowning can be, consider this: It is the No. 2 cause of accidental death in children, ages 15 and under (just behind vehicle accidents)—of the approximately 750 children who will drown next year, about 375 of them will do so within 25 yards of a parent or other adult. In some of those drownings, the adult will actually watch the child do it, having no idea it is happening.* Drowning does not look like drowning—Dr. Pia, in an article in the Coast Guard’s On Scene magazine, described the Instinctive Drowning Response like this:
- “Except in rare circumstances, drowning people are physiologically unable to call out for help. The respiratory system was designed for breathing. Speech is the secondary or overlaid function. Breathing must be fulfilled before speech occurs.
- Drowning people’s mouths alternately sink below and reappear above the surface of the water. The mouths of drowning people are not above the surface of the water long enough for them to exhale, inhale, and call out for help. When the drowning people’s mouths are above the surface, they exhale and inhale quickly as their mouths start to sink below the surface of the water.
- Drowning people cannot wave for help. Nature instinctively forces them to extend their arms laterally and press down on the water’s surface. Pressing down on the surface of the water permits drowning people to leverage their bodies so they can lift their mouths out of the water to breathe.
- Throughout the Instinctive Drowning Response, drowning people cannot voluntarily control their arm movements. Physiologically, drowning people who are struggling on the surface of the water cannot stop drowning and perform voluntary movements such as waving for help, moving toward a rescuer, or reaching out for a piece of rescue equipment.
- From beginning to end of the Instinctive Drowning Response people’s bodies remain upright in the water, with no evidence of a supporting kick. Unless rescued by a trained lifeguard, these drowning people can only struggle on the surface of the water from 20 to 60 seconds before submersion occurs.”
This doesn’t mean that a person that is yelling for help and thrashing isn’t in real trouble—they are experiencing aquatic distress. Not always present before the Instinctive Drowning Response, aquatic distress doesn’t last long—but unlike true drowning, these victims can still assist in their own rescue. They can grab lifelines, throw rings, etc.
Look for these other signs of drowning when persons are in the water:
- Head low in the water, mouth at water level
- Head tilted back with mouth open
- Eyes glassy and empty, unable to focus
- Eyes closed
- Hair over forehead or eyes
- Not using legs—vertical
- Hyperventilating or gasping
- Trying to swim in a particular direction but not making headway
- Trying to roll over on the back
- Appear to be climbing an invisible ladder
So if a crew member falls overboard and everything looks OK—don’t be too sure. Sometimes the most common indication that someone is drowning is that they don’t look like they’re drowning. They may just look like they are treading water and looking up at the deck. One way to be sure? Ask them, “Are you all right?” If they can answer at all—they probably are. If they return a blank stare, you may have less than 30 seconds to get to them. And parents—children playing in the water make noise. When they get quiet, you get to them and find out why.
(Source: stfueverything, via momtotink)
12 6 / 2013
Just Like Mommy
Right after an exhausting battle of the wills during feeding time, Zoey sat her little dolls in a bucket and shook her head very seriously at them, saying, “nonononononono.” I guess they need to stop playing with their milk too.
11 6 / 2013
06 6 / 2013
Jellybean at 15 Weeks. I haven’t gained much overall, but I think all my extra weight has shifted to one place. Starting to feel little flutters this week :)
03 6 / 2013
Make it Mondays
I love this idea. What did we make today?
Today we made therapy goals for Z’s new plan. Every 6 months we meet with the OT and case manager to reassess progress. It always feels good to look at the past accomplished goals and see that we are ready for the new after only 6 months.
For example, this weekend Zoey began drinking by mouth 2 ounces of milk in a sitting, so the next step is to work toward drinking half of each feeding (3-4 ounces) in a cup. I don’t think this will take 6 months, but it is a new goal. The tube weaning has started :)
03 6 / 2013
Mail Call
For the past year, more often than not the mail addressed to me is really for “the mom of Zoey”. She receives more mail than Michael and I combined. Most often it includes health insurance claims and reports from various doctors’ visits. Saturday was a special day, because I received an important notice from the federal department of Supplemental Security Income. Backing up bit, I originally filed for SSI when Zoey was less than 2 months old, and was denied. The reasons aren’t important, but I appealed the process once it became more apparent that she really should qualify as a minor with special needs. So…after months of a ridiculous mountain of paperwork and a few encouraging phone calls…Zoey was approved for monthly SSI! She is also approved dating back to my original application in July of 2012, so we have already started receiving back payments as well.
According to the notice, she qualifies medically as well as non-medically, which makes me wonder how they managed to overlook her case to begin with. But the bottom line is that we now have enough through this added income alone to cover monthly payments on her past medical expenses. She also recently qualified for Medicaid, so her current bills are almost non-existent as well. A final, well-timed, piece of the puzzle is that we will receive the second half of her total back payments in five months…right about when the next little one will be making a first appearance and we will be needing some extra cash.
I know I’m hormonal, but I started crying when I opened this letter and slowly realized that, one by one, so many pieces started falling into place. Through it all, it was as if God was reminding me, “You aren’t sure where this is going, but I have it covered. It’s going to be okay.”
I have always held onto hope for Zoey, but this is some tangible proof that she is being taken care of, whether we ever get our financial acts together or not.

