12 6 / 2013
Right after an exhausting battle of the wills during feeding time, Zoey sat her little dolls in a bucket and shook her head very seriously at them, saying, “nonononononono.” I guess they need to stop playing with their milk too.
03 6 / 2013
I love this idea. What did we make today?
Today we made therapy goals for Z’s new plan. Every 6 months we meet with the OT and case manager to reassess progress. It always feels good to look at the past accomplished goals and see that we are ready for the new after only 6 months.
For example, this weekend Zoey began drinking by mouth 2 ounces of milk in a sitting, so the next step is to work toward drinking half of each feeding (3-4 ounces) in a cup. I don’t think this will take 6 months, but it is a new goal. The tube weaning has started :)
03 6 / 2013
For the past year, more often than not the mail addressed to me is really for “the mom of Zoey”. She receives more mail than Michael and I combined. Most often it includes health insurance claims and reports from various doctors’ visits. Saturday was a special day, because I received an important notice from the federal department of Supplemental Security Income. Backing up bit, I originally filed for SSI when Zoey was less than 2 months old, and was denied. The reasons aren’t important, but I appealed the process once it became more apparent that she really should qualify as a minor with special needs. So…after months of a ridiculous mountain of paperwork and a few encouraging phone calls…Zoey was approved for monthly SSI! She is also approved dating back to my original application in July of 2012, so we have already started receiving back payments as well.
According to the notice, she qualifies medically as well as non-medically, which makes me wonder how they managed to overlook her case to begin with. But the bottom line is that we now have enough through this added income alone to cover monthly payments on her past medical expenses. She also recently qualified for Medicaid, so her current bills are almost non-existent as well. A final, well-timed, piece of the puzzle is that we will receive the second half of her total back payments in five months…right about when the next little one will be making a first appearance and we will be needing some extra cash.
I know I’m hormonal, but I started crying when I opened this letter and slowly realized that, one by one, so many pieces started falling into place. Through it all, it was as if God was reminding me, “You aren’t sure where this is going, but I have it covered. It’s going to be okay.”
I have always held onto hope for Zoey, but this is some tangible proof that she is being taken care of, whether we ever get our financial acts together or not.